October 26, 2022
Tawakkal
October 25, 2022
Bila nak sambung My Blepharospasm Journey?
Covid-19 for the 2nd time
Alhamdulillah 'ala kulli hal...
Today is the last day of my 7 days quarantine. But actually I already tested negative on my 5th day alhamdulillah. But then again, there is no difference if I quarantined until how many days because I am not going anywhere hehe..
Anyway, i was quite devastated during first few days. Not because I had quite a bad sore throat, but because my kids cannot come home during Deepavali holidays.. huhuhu... I was so looking forward to it, 5 days of schools holidays... huhuhu.. Raihana need to stay at nenek's house. While Mai and Maili just stay put in their college. Mai has joined a program organized by UIA so it is not so boring for her. Furthermore, her roommates are also not going back. While Humaira she said she only 'mereput' sorang-sorang dalam bilik because all the roommates had gone back to their hometown. So yesterday Ayah spent some time with her eating Mahbub after he went to office to get some stuff,
How does it feel? Did I feel any difference from the first time i had this virus? Frankly speaking, i already forgot how it feels the first time. I had it in Feb 2021. What i remember is that during that qtime I was so busy with assignment and presentations that i just endured the fever, body ache, sore throat and cough to get my work done. I even stayed up until late and act tough in front of everybody eventhough my mind told me to get rest. But then again, during that time, we did not know that I had Covid.
This time around, it was my husband first to get the virus from office. A few of his teammates are also down with Covid. I was tested positive when my husband was in Day 5. My fever was quite mild. But the sore throat is killing me. Only after 4th day my sore throat was getting better, but replaced by cough. Until today, i still cough a lot. But getting better insya allah.
This time around, we are not so afraid of the virus anymore. I tend to my husband during first few days because he had quite a high fever. And maybe that is why I got infected too. We do not quarantined in the bedroom. While imran is the one who is always staying in his room, as usual. Alhamdulillah so far Imran is ok.
Nowadays, we treat covid like normal fever and flu. Alhamdulillah vaccine do works, with Allah's will.
May 26, 2022
My Blepharospasm Journey 2: Hemifacial Spasm
April 11, 2022
Write To Share: Bengkel Seni Peluahan Dalam Penulisan
Sabot lepas, saya telah berkesempatan untuk mengikuti Bengkel Seni Peluahan Dalam Penulisan oleh Bonda Nor. Bengkel secara online. Seni peluahan ni ada 3 kategori:
Melankoli
Berdiri depan cermin..
Berbedak bergincu bagai..
Rambut disisir rapi..
Tapi tak nampak..
LEMAH!!
April 01, 2022
My New MacBook Air
I am writing from my new MacBook Air.. yuhooo....
My previous laptop is Microsoft Surface. I think I have been using it for more than 5 years. Around 7 years, I think. It started to act weird recently. It became very slow, sometimes it just stopped working and I even get sudden blue screen.
At first I wanted to continue my loyalty to Surface. I have been surveying the latest Microsoft Surface Pro 8. But my husband really really insist me on getting this MacBook Air. He has been alluring me to change to MacBook many times but I just don't want to trouble myself with iOS thingy. Furthermore, I have quite a number of software for my Master study which might have trouble working on iOS platform such as Anaconda. That's what I heard.
But in the end, I resorted to my husband's continuous nagging.. hehe.. But alhamdulillah, so far I do not regret it. I am having a good time with my new buddy, yeay!!
March 12, 2022
My Blepharospasm Journey 1: How it started
The Headache
It's all started with headache. I don't know if it's related but that is how my problem started. I had frequent headache. It happened maybe once a month. Usually it was triggered when I missed my afternoon nap or I missed my 10am tea break. When my headache happened, it was only on the left side. And the headache made my left eyelid felt heavy. Sometimes I just couldn't open my left eye. It felt like something was sitting above my left eyelid. And usually I would felt nausea. Mabuk. Ini yg paling tak tahan sebab bila rasa mabuk tu yang tak boleh buat kerja tu. But all these would go away if I sleep. And this has been going on for 10 years... opss... Yeah, I just managed :)
Until Covid came knocking at my door..
The Covid-19
I had Covid in February 2021 when there were no vaccine yet. My symptom was mild alhamdulillah. I thought it was a normal fever because I did not have any close contact to any Covid patient. We were strictly at home during MCO at that time. Merasa la duduk di MAEPS seminggu. My husband who was also positive did not have to go to MAEPS because he has no symptom during our checkup at CAC. The kids were all negative alhamdulillah. So they were the ones who took care of dad during that trying times, with humaira and maisara were just a few weeks before SPM. Kesian diorang. Nasib baik sempat habis kuarantin before the SPM.
When I recovered from COVID the headache became more frequent. And when it happened, one night of sleep was not enough to make it go away like before. Sometimes it prolonged until 2 days. I thought it might be also caused by too much screen time and too much work. We were working from home with endless meetings, slides, presentations, etc. I was involved with 2 big projects (Stellar, SNI) which requires me to work a lot with documentations - process simplification, business requirement gatherings. I was also in my 3rd semester of my master study. So with all those assignments, projects, work tasks, slides, etc, I might have overworked myself a bit, now that I looked back. And the headache came unpredicted unlike before. It was not because of lack of food or lack of sleep. It just came whenever it wanted. Managing my headache was getting more challenging.
Occipital Neuralgia
When it becomes more frequent and more unbearable, I set an appointment with Dr Nor Faizal, a neurosurgeon in UMSC. Why neurosurgeon? Actually he is my husband's friend. So it was easy to get his advice even prior to our meeting with him. I had MRI in March. Alhamdulillah there were no abnormalities such as tumor or anything else. After further physical examination, I was diagnosed with Occipital Neuralgia.
Occipital neuralgia is a distinct type of headache characterized by piercing, throbbing, or electric-shock-like chronic pain in the upper neck, back of the head, and behind the ears, usually on one side of the head. Typically, the pain of occipital neuralgia begins in the neck and then spreads upwards. (definition by The National Institute of Neurological Disorders and Stroke (NINDS))
I was prescribed with Cereblex, a type of pain killer. But it did not help my headache. After further consultation, I decided to get the nerve block injection. It was a very quick procedure. I was injected at the back of my head. The medicine was injected directly into my occipital nerve at two spots. I was dizzy for a few minutes, but that was all. I was on MC for 4 days if I am not mistaken. Yeah my head was kind of feeling numb and funny for a few days. Macam sengal-sengal gitu. Alhamdulillah after that, my condition has improved a lot. The headache has gone.
The Dengue Fever
It was Ramadhan. Suddenly I felt that I am having fever. It lasted for 4 -5 days. Oh no.. it can't be Covid again. After blood test, it was confirmed that I had dengue. I was admitted in Columbia Asia Hospital for 5 days. My mom said "Kok ada je ko ni. Hari tu baru kena covid, ni denggi pulak". "Habis tu macamana mak, mana iza tau" Well, my mom wasn't saying that because she was angry but because she pitied me.
To make things worse, I was actually just being promoted to a new post in a new division. I had to postpone reporting duty to the new supervisor as I was on long MC. Bad first impression huh.
Heavy Left Eye
Not long after I recovered from dengue, a new problem started which was my left eyes. Remember when I said that when I had headache, my left eyes would felt heavy. Yes it happened again but this time it was without the headache. During this time, my overall health was not very good too. I think my body still not fit after covid and then dengue. My weight was just at 43 kg (my normal weight is 48kg). I lost my appetite. I always felt macam nak demam, badan dedar2 and sometimes palpitation. Selalu rasa kebas-kebas badan/bahu. Senang kena cramp kat kaki, tangan, kadang kat jari pun boleh cramp. Sometimes I felt irregular heartbeat sampai buat checkup dengan cardiologist. But my heart was fine.
My condition get worse day by day especially the eyes. After some time, it was not just the eyelid, but I felt burning sensation at the back of my eyes and around the left side of my head. I really struggling with works and my study because of this. During work, I need to hold my left eyes open to look at the computer. Whenever I had chance, I would lie down and close my eyes praying that it will go away. My work was very slow. There are a lot of things that I cannot do as productive and effective as before. Just imagine what my new boss would think of me. huhu.. I was really in stress mode.
Is it because of long covid? nerve problem? immune system problem?
December 15, 2021
Blepharospasm
So, it is blepharospasm.
After a series of consultations from neurosurgeons, neurologist, ophthalmologist, neuro-ophthalmologist, movement disorder specialist, from UMSC, HKL, HUKM and Unisza Hospital (if we includes online consultations), it is agreed that the problem that I am having with my eyes is called Blepharospasm.
You might notice that I am always with my eye shades on lately. I have difficulty to open my eyes, I cannot lift my eyelids. My eyes can only open about 5-10 percent. So most of the time I just look down. If I want to look to the front, I need to 'mendongak', or force open my eyes using my fingers. (Yup, suddenly you might imagine how Mr Bean using matchstick to keep his eyes open :) )
Ujian Allah datang dalam bermacam-macam bentuk untuk melihat sejauh mana kita sabar dan redha. Ya Allah, banyaknya pengajaran dan kesedaran yang saya dapat melalui ujian ini. Subhanallah, setiap kudrat kita walau sekecil mana, walau hanya untuk mengangkat kelopak mata adalah dengan izin Allah. Rupa-rupanya kita ini sangat lemah. Ya Allah.. Masya allah saya sangat bersyukur walaupun ujian ini telah merubah kehidupan saya namun saya sangat-sangat bersyukur kerana Allah masih izinkan saya untuk melihat.. walaupun dengan kepayahan. Ya Allah.. Alhamdulillah Ya Allah... Walaupun saya bagaikan OKU, nak berjalan pun kena pegang tangan orang, namun badan saya sihat, makan saya berselera, tidur saya lena.. ya allah.. masya allah... subhanallah.. alhamdulillah... banyaknya lagi nikmat yg Allah beri yang mungkin adakalanya saya terlupa untuk mensyukurinya.
Benar bagai di kata. Dalam ujian ada nikmat. Betapa banyak nikmat yang saya terima dan yg saya baru sadari, Subhanallah.. ianya satu pengalaman hidup dan satu turning point yang saya amat2 syukuri.
Subhanallah.. Alhamdulilah... Allahu Akbar..
Ah.. cerita ini sebenarnya sangat panjang.. Nantilah saya nukilkan di lain masa insya allah..
September 18, 2021
'Lays' your memories
September 13, 2021
September 01, 2021
August 29, 2021
Acupuncture
February 04, 2021
August 02, 2019
Aqil, my music buddy
Sejak minggu lepas, FT kata dia akan keluar album baru. ALBUM TERAKHIR dia kata. ROJAK nama album yang terakhir ni. Walaupun actually dia kumpulkan lagu-lagu single dia sebelum ni, cuma ada beberapa la lagu baru, tapi dalam box tu ada macam-macam merchandise - keychain, stickers, phone punya apa tu yang lekat kat belakang phone tu (oh phone grips namanya), then ada polaroid photo with his autograph and a postcard from him. Whoaaa.... memang plan nak beli la. Comel2 pulak tu..Akan start jual secara online pada 2 August, which is today.
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| Phone Grips yang comel |
Saya tutup dulu.
Pagi tadi nak tunjuk kat Raihana... saja la nak sembang.. Tapi tengok-tengok dah SOLD OUT? Aduhh....
So now I am regretting it... huhuhuhu....
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| Aduh... menyesalnya tak terus beli.. huhuhu |
Ah, macam ni lah.. terpaksa mama meroyan kat sini. Dah takde Aqil nak layan mama cerita pasal lagu baru, album baru, video klip baru... huhuhu... Hanya playlist Aqil dalam iTune jadi peneman mama dalam kereta. Hari tu ada lagu baru Bikers Kental. Aqil mesti suka tu sebab gandingan FT dengan Akim. Dua-dua memang Aqil minat. Cuma Shamsul Yusuf belum ada lagu baru lagi dengan Mawi. Itu pun favourite Aqil juga.
Aqil nyanyi lagu Suriram:
Miss you Aqil.. ðŸ˜
Manifestasi rindu
Rupa-rupanya tahun ini memang tahun kehilangan. Bermula dengan Aqil, kemudian K Idah. Baru-baru ini, kami kehilangan Chiko pula. Betul-betul pada hari tarikh lahir Aqil Aqlan, 9th July. Sedih.. tentulah sedih..
Akhir-akhir ini, saya selalu rasa macam nak menangis. Kadang-kadang teringat sesuatu lalu tanpa disedari air mata mengalir.
Saya rindu membaca buku bersama Aqil. Saya rindu menyanyi lagu Faizal Tahir dengan Aqil.
Aqil, selain suka tengok Youtube, dia suka baca buku komik Boboiboy. Kami akan baca sama-sama. Kami akan berganti-ganti baca dialog. Saya memang suka baca buku dengan anak-anak. Lebih kepada bercerita sebenarnya. Tak ikut pun dialog dalam buku tu. Sambil tu boleh berlakon buat suara macam-macam. Banyak buku Aqil saya dah bagi-bagi kepada sepupu Aqil tapi ada beberapa buku favourite Aqil yang saya simpan. Namun baru-baru ini saya bagi juga buku2 tu kepada sepupunya. Saya fikir-fikir balik, lebih baik ianya memberi manfaat kepada orang lain pula. Biarlah kenangan itu tersimpan di dalam hati. Buku-buku yang best dan selalu kami baca bersama - Harry and a Bucket Full of Dinosaur, Megaboy, Goldilocks and the Three Bears, Red Riding Hood, Hensel & Gretel, Big Book of Words, Pin Pin.
Buku-buku kanak-kanak ni bukan saja ceritanya kena menarik, yang penting grafiknya kena menarik. Tulisan tak perlu banyak-banyak dah. Illustrasinya sepatutnya dah boleh menceritakan cerita tersebut.
I miss having small kids to make my life in chaos. Tapi saya sedar, anak-anak tetap akan membesar. Kalau Aqil Aqlan masih ada pun mereka tetap akan membesar juga.
March 19, 2019
Persediaan Umrah
Alhamdulillah.. sedikit sebanyak persiapan dah dibuat. Bayaran pakej dah selesai. Barang-barang nak beli dah selesai rasanya. Hari tu beli di kedai berdekatan Warta Bangi. Tapi saya rasa telekung mini yang saya beli tu macam jarang sikit la. Tapi boleh je pakai, kat dalam nanti pakai la tudung juga. Cuma rasa menyesal pulak beli yang tu huhu. Tapi dah beli so guna je lah. Sebenarnya sepatutnya tak perlu beli pun. Pakai je lah telekung/tudung yang dah ada. Tapi terpengaruh dengan trend semasa hehe. Apa taknya, asyik melintas je kat FB telekung umrah ni. Huhu.. Astaghfirullahal azim...
Kena ulangkaji bab ibadah umrah. Hari tu ejen dah buat kelas yang pertama. Nanti insya allah akan ada satu lagi. Senang ejen depan rumah hehe. Sambil-sambil tu kami tengok ceramah-ceramah pasal umrah kat dalam youtube. Saya juga ada beli satu buku - Diari Umrah Pertamaku, untuk nak tau pengalaman orang yang buat umrah. Alhamdulillah saya rasa ada banyak tips2 yang dikongsi oleh penulis yang boleh saya jadikan panduan.
Anak-anak tak ikut. Ini kali pertama untuk saya, dan kedua untuk suami, jadi biarlah kami je yang pergi dulu. Lagipun kalau nak bawa semua banyak pula belanjanya. Insya allah kalau ada rezeki lagi di masa hadapan, boleh la kita pergi sekeluarga.
Nanti Raihana akan duduk di rumah Pak Su. Nasib baik la rumah Pak Su kat jalan belakang je. Jadi bas sekolah pun tinggal nak bagitau ambik Raihana kat belakang lah. Humaira, Maisara dan Imran untuk weekend pertama akan stay kat sekolah. Weekend kedua tumpang rumah Chuyah. Alhamdulillah ada adik beradik yang dekat yang boleh tolong. Luqman pulak takde masalah, stay je la kat asrama tu. Semoga Allah permudahkan urusan anak-anak kami semua dan pakcik makcik dan cikgu2 yang tolong jaga anak-anak kami selama 2 minggu kami tiada nanti.
Excited.. Nervous.. Counting days...





